Tag Archives: my world rett

The day of my birthday ...

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Hello friends, it's my birthday, today I make exactly 14 years. I can not help but look back at all you've experienced, what I've felt, the whole journey ... We have taken a tremendous turn my disability, my limitations, we have demonstrated that live and feel, is above any interest.

We fought, played, suffered, sweated, but we also smiled to hope we have opened her eyes to see what we have, and enjoy it without needing anything else.

We have overcome the ignorance, to invisibility, to intolerance, by dint of working quietly, and keep walking without looking away from our goal ... be happy ...

Today Fourteen years later, a woman's body and, with feelings and the desire to live in a teenager, I have also the same illusions, and continue walking along with who makes me happy, without expecting anything in return ..

Maria Ferre Thanks for all the compliments ...

Maria Ferre ....

3rd Conference on Rett Syndrome

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Hello friends this weekend at the clinic will be held teknon, the yterceras conference on S. of Rett hand from teknon Foundation and the Catalan Association S. Rett. From this link you can watch live these days as on line, and also learn a little more about this disease, and care of the girls. Penseis whom you can share that would be interested, work and family.

CLICK HERE FOR LIVE.

Thanks to those who make it possible to gradually advance in this world, our world Rett.

Josele

Back to the source ...

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Yesterday we had exactly five years to have this car, five years of racing, workouts, lose fight for invisibility which until then had to find our site. And throughout this journey, maybe I left out that force me to fight, that inner strength he did not doubt the existence a few years ago. Surely I have not known it was important to differentiate where and where not to, I have devoted much energy to support other events, and I have put aside my own home, that gave us the strength to Maria and me, and to challenge us cold and the miles, so she and I .. be one, her legs mine, his strength and energy, mine, and his smile .... the best of rewards ...

Yesterday we went back to our roots, to our principles, "Back to the source" to run by running, to again have the feeling that we are alive more than ever.

Here you have something that means a lot to us both, her smile and a very special flower ....

Thank you all on behalf of Maria and my own ...

the best of rewards ...

the best of rewards ...

10 K Valencia 2013

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Hello friends, next Sunday will be held the fourth edition of 10 K Valencia . So begins the year in the best way possible, running ...
I remember this test with special affection, as it was in its first edition, in January 2009, when the carriage gave us currently being Maria in racing, and that until then, she ran in your shopping street, and that after so many miles with wheels'm really blown ...
I want to thank the Organization and all that from the time we got "wings" to do what Mary and I like ... Running ...

10k valence 2013
I want to wish luck to all the participants and thank this gesture of solidarity that have been with us for so long ...

Maria and Josele ...

A feast for Maria ...

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Hello friends, sometimes life is going and you're driving leading to meet people who eventually become important in your vida.Un day and thanks to a great friend, I met someone who offered me something I had never had Maria, a party in your honor ...
The idea, from the beginning, I ilusionó much, and thanks to the support we receive from the management of the Mystic Disco, Xativa, Maria had a party where there were magicians, games, many children who knew, and who contributed to us happy ..
On the occasion of the Feast was released this video by the Mystic Disco, and I like that you do not waste detail ... is truly very exciting ... "Blessed is the light of his eyes"

Thanks to Javi, his team, to all who attended that party, who with their work, their time helped us, but especially to a person, which I hope life the opportunity to thank you for all you do for us ...

Maria and Josele ..