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Hello friends, some years ago that Maria and I participated assiduously to marathons and other sporting events in other disciplines. But recently in an interview that we conducted, we asked you what was the main reason for this action, to which I replied, "just seeing Maria's face will obtain that response"
During last year's Valencia Marathon 2013, we recorded this image. It is a small video clip, just unedited, I think it perfectly meets this and many other questions.
Just looking at her expression, we realize that there can never be bigger than that reason.
Yesterday holiday do not have to get up early for work, or go to school, so no more get up and have breakfast together, I asked the kids to paint on slate house, where they want to go today ... This pinto Dani, the youngest of my children, I think too many words.
So the decision was easy and unanimous ... We We go to the mountains! We prepare the backpack, the food and headed to Gilet in concrete Holy Spirit , with the intention of passing the day there and climb to the cross. For all of them, including Mary would be their first summit.
The rest of the day ... you imagine laughter games new experiences for everyone ... but Mary can not walk, rose to the top without his car ...
I hope this summit is the first of a long list, and you can feel the freedom and magic that convey these lugares.Sin definitely a memorable day for all us ...
We were at our friends' house, where we enjoyed his company, of being together, good food, water, sun ... Vika There we met a Ukrainian girl, blond, blue eyes, nice, correct and polite, but we barely know our language, let alone us yours. A little girl drags aftermath of the nuclear catastrophe. And however strange reason, Vika, who played with the children even with little communication, with whom he had a special connection was with Mary. From the first moment we felt we had something special between the two of them. Only Vika hold her hand to Mary, laughed, and looked very special way. By mid-afternoon, and a paint shop of the festivities, she painted a picture. At the end of the day and time of departure, Vika decided to give this drawing to Mary.
With that non-verbal communication, I presented the drawing that is currently hanging in the room of Mary.
Instead of guardárselo and take him to his homeland, decided to give another utility, give it to whom alone he could not paint any picture ... that more can I say ... From here I want to thank the girl that gesture, our friends for being so special and make a huge effort to make a great day to all, but also to those families who discreetly and anonymously welcome in summer to children in their daily lives have very little ...
Hello friends, it is my birthday today I'm exactly 14 years. I can not help but look back on everything I've experienced, what I've felt, the whole journey ... We have taken a turn to my tremendous disability, my limitations, we have demonstrated that live and feel, is above any interest.
We fought, played, wins, sweaty, but we also smiled hope we have opened her eyes to see what we have, and enjoy it without needing anything more.
We have overcome the ignorance, to invisibility, to intolerance, to quietly work force, and keep walking without looking away from our goal ... be happy ...
Fourteen years later, today a woman's body and, with feelings and the desire to live in a teenager, I also have the same dreams, and I will be accompanied by those who walked made me happy, without expecting anything in return ..
Hello friends this weekend will be held in the Teknon clinic, the yterceras conference on S. Rett hand of teknon Foundation and the Catalan Association S. Rett. From this link you can watch live these days form on line, and also learn a little more about this disease, and care of girls. Whom you can share penseis that could be interesting, work and family.