Tag Archives: law dependence

SAN SILVESTRE VALENCIA 2009

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A year and this is the third witness to the most popular race of the city crowded with the mind set when we went for the first time Mary and I to the test, back in 2007.
It has been three years that we have traveled many miles, many experiences, new car running thanks to the friends of the Blue Line, and a special claim, the law of dependence. A law for over three years that is approved but not implemented, and most importantly, "nothing happens"
I can not imagine what would happen if any other legislation, it did the same, sure would be inconceivable, but when it comes to the disabled population, anything goes.
Worse, in my opinion, are much to blame those who did not apply, as those who do nothing to apply ...
Hopefully soon change this situation and can wear a shirt to put on big ... THANK YOU FOR APPLYING THE LAW TO ALL ...
To whom it may concern ...
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Necessary drugs ... are all covered by the SS?

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Hi, recently, we observed that Maria drops her hair thoroughly and alarmingly. We got in touch with your pediatrician, and recommended a shock treatment, because we assume that it would be caused by vitamin deficiency of some sort. So without hesitation acquire prescription drugs. What was our surprise when none of the items, enter the Social Security system. Specifically they are quite expensive, and of course, to see you do, do not buy them and see Mary as her hair falls out, or pay and try to see what happens, although you will not do anything.
Since Maria was diagnosed, it's been about eight years old using a product against constipation, and you need daily, whether or if. This product is not covered either, and remember that constipation is a clear and evident symptoms of Rett syndrome, and suffering all girls.
In any case, it should be clear that not all health care needs a person with the condition of Mary, are subject to Social Security scheme, and we have to face them without hesitation.
It is important to note this detail as popular is the idea that all they need is free, and nothing further from reality ...
Sure you know more like them, I think there are regions that are not even including diapers.
Make it clear that this must change, and that girls and families who unfortunately they live in this world, do not receive the necessary support by the government ....

Josele and Maria

back from vacation.

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Maria Ferre

Maria Ferre

For days I have not written anything, but after being on vacation and enjoy a few days on the beach, I think now is the time. We were in Xilxes, in a very quiet beach, where Maria was able to enjoy long periods in the water, at the mercy of the waves that had. This zone is perfectly entitled to go with the disabled, and brings together many conditions for a few days off from the daily grind.
Soon begin to realize our particular campaign claiming enforcement of dependence, which has passed since November 2006, and still do not know anyone that perceiving anything from this law in Valencia
We keep you informed, because it sure is not easy.

LAW OF DEPENDENCE

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Maria, Cristina y Dani

Maria, Christina and Dani

Hi, as you all know some years ago passed a law that many need, and that is full of good intentions but few results. Here in Valencia, that Maria is a beneficiary of that law, fill the application in June 2008, and well, I can say that a year ago, and we have nothing or almost nothing.
This year has past, we have been visited by a social worker from the Department of Social Welfare, I make a favorable report, a visit from a social worker by the City, he described Mary as Great Dependent, and referred the report back to the Department of Social Welfare, where within three months should have issued a valuation report, to continue with an endless process.
Well, dated March 23, 2009 came the report of the Town Hall offices, and this is the date from Conselleria not know anything, or whether the three months that they are established, I have jumped.
What else we have to wait? if the time that the administration is created, already in itself excessive, they are popping themselves .... I can say ....
Maria has a disability of 87% and needs attention every day and every night but it seems that they have to apply the law, all they can delay. We know that after this procedure will be others that will surely like this, so maybe, and hopefully after a couple of years or three of your request, we began to see light at the end the tunnel.
Best of all this is that the media are the politicians saying how good they are and what help this group of people that they live a life that does not deserve anyone and we already have enough of ours to us to share in an administrative delay not deserve.
On behalf of Maria, just ask one thing LAW THAT APPLY NOW

Maria and Josele ...

"LAW OF THE UNIT"

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Hi, we have the opportunity to show our dear politicians who are disabled, which require you to apply the law, they are great employees, it's really nice out in newspapers and stuff their mouths saying how good they are and how well they do things, but those most in need and who can not fend for themselves, are not getting anything.
The records are an intolerable delay, and this does not look to change, if not worse. I encourage you to asistais this concentration to which of course, Maria and I go and I hope that many more people to see if given the hint.
We can not miss this opportunity, to see if we can get
apply the law AND

Maria and Josele ...

CHARITY CONCERT LINE BLUE

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concierto solidario Rett

Rett charity concert

Hi, I have the pleasure to inform you that from the Blue Line Club, will organize the first charity concert. In this event, and already starting to get used to the important thing is not to stop and do one thing after another, we have agreed, and in the El Loco, located on the street Scholar Orellana, 12 Valencia, act: Gilbertástico , Lynn, Fernando and Bas. Tickets are 10 Euros, and most importantly, the collection designed by equal parts anger to the Valencian Association and Rett Syndrome Foundation Juan Bonal in Brazil. Regarding VS Rett Association, the funds will go for the ambitious research project that takes place in San Joan de Deu hospital, to see if we're lucky we have discovered something scream that will make the Rett girls, stop being so.

For the same reason for going through proceeds of the rights of the author of "creatures from another planet" by Elizabeth Pedrosa, where in his BLOG there is also the account number where contributions are collected to fund this research project.

Here you have more information, the Forum Blue Line

HAPPY BIRTHDAY

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Maria y Cristina Fallas 2009

Maria and Cristina Fallas 2009

Hello friends, soon will be the birthday of Mary, specifically the next March 27 will be 10 years. I remember the day he was born, although it sounds a cliché, it seems like yesterday, however, has already spent some time.
She was our first child and people told us "and you will see how it changes your life," and we did not know anyone was all that was going to change.
But I like to look back more than necessary, I prefer to always look forward, and today trying to get a girl as happy as possible, and having all that you need, and I do not mean merely material, but a lot of things more, and always thinking that we still have a long way to carry out, or as I say many miles to go.
Today we are fighting for enforcing a law that many politicians were to appoint her mouth full, but which is still immersed in a vacuum of endless efforts and steps by the administration, and only do delay their implementation, I mean the "law of dependence".
Recently as I was trying to figure out the record of Mary, said one official, "that my record was going very fast," "we had delivered the papers in June 2008" but hey if that's going fast, I do not think so will be slow.
In any case, she is 10 years old and have started to get the gifts of many people, for which I thank on your behalf. She will have her birthday party like any girl ...

Maria and Josele ...

FELIZ CUMPLEAÑOS MARIA

HAPPY BIRTHDAY MARIA

We are exhausted

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"We are exhausted," words that unfortunately too often named parents of disabled children, when faced with barriers that life presents us. I refer, of course, the barriers that since we created daily administration.
We have a law of dependence that is full of good intentions, but empty of results, because here in our community there are no funds to run, then no good. Read this news, coming from a parent of a disabled girl, shout, although since the administration did not hear them, they each draw their own conclusions.

this is the news ...

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