Tag Archives: Sports for disabled

Valencia Marathon 2011

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Hello friends, here are the video of the last marathon I've done Maria and I, our Eighth Marathon together, accompanied or not, to our great friends ...
I would like to dedicate it to all Rett girls, their families, but especially to those who day by day, and with small gestures give us strength to go on ...
I want to thank the organization, Mariangeles to Kings (Talentum), my family, all team members Cazarett-os, my inseparable friends ... to all who support us and follow us wherever we go, all ahead next to each goal, all that in one way or another push our car .... our intrepid camera thanks to him we can watch these videos, all of you ... Thank you ...

Josele and Maria ...

"The Victorious"

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Hi, this weekend our friend Victor Cerda, will hold a sporting event than ever ever done. Running will travel 300 km in 3 days, following the GR7 footpath that crosses the province from north to Valencia Sur.No performed this test for sports purposes, if not an end Solidario. As imaginaréis, is intended to Fight Rett Syndrome.
Thanks are due not only to Victor this feat, but it also, all this would not be possible without the help of this great team carrying forward this project. Could tell you names, but better not do it. Take something as ambitious reality is hard work, long time, many calls, emails ... definitely a lot of energy ...

The Victorious ....

I want to thank, from the first to the last person one way or another parcicipa in this dream, one day those who closed their eyes and were able to see this Rett-or, to make it happen, and why not enjoy with it.
Maria does not know, but it alone makes it possible for dreams to fulfill ...
Mountain 300 kilometers in 3 days, and by the RETT ALL GIRLS
You can follow live through Victor -OS.ORG CAZARETT participate by sending messages, working through ARENA.ORG GRAIN MI

Thanks .....

Maria and Josele ...

Radio interview on ES ...

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Hello friends I want to share with you this last interview that we made yesterday. The truth is that for a while now, we are taking some media attention, and you're good to go against this disease. I think that little by little and thanks to all this ceased to be unknown ...

about to begin .... EN Radio ...

LISTEN TO THE INTERVIEW, CLICK HERE.
Josele interview Ferre, ES Radio, 28-September-2011

MARK Interview

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A few years ago when this story began, I told a friend, "if one day in the newspaper salieras MARK, from the moment of Rett Syndrome, everyone would know, and many of the problems we have today in races disappear completely. " I did not know how right he was.

My thanks to Andrew, not to write an article with your hands, if not with the heart, Jose A. Sanz, because the camera lens captured much more than an image, all team members daily Marca, who have supported this cause and continue to support it, and especially to all who have read this news, and that in one way or another you felt identified. If you look at this photo of Maria behind the car, I'm not .... you are all pushing .... I think Rett syndrome is no longer known .... and I owe it to you ....

imagen propiedad de MARCA

Josele, Maria .........

Here you have the interview in digital format with over 100 comments, and PDF, ELCARRITO of happiness , as well as video, in better quality ... All these files and images as well as Video, are the property of Mark, and have been assigned to be included exclusively in this Blog ... Thanks again ....

Josele and Maria ...

New initiative, solidarity bracelets ...

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Hi, a few days ago, I received by the club Runnersworld Valencia, a great initiative. This is for a bracelet silicone, solidarity and whose profits go entirely to the Fundació Sant Joan de Deu, and against S. Rett.
I can say only one word, FORWARD
Not only were all my support, if not that this gesture demonstrates the greatness of the members of this club.

Javi, Josele and Maria ...

These bracelets are in the establishment Runnersworld, which is in Valencia on Gran Via Germania No. 14 B. For only $ 2 can buy one of these bracelets, being thus cooperating with the investigation of Maria's illness, and without implying any profit.

Pulseras Solidarias

Solidarity Bracelets

In addition to this initiative, and taking advantage of the next event to be performed also launched the " joint registration "in the 100km Ultratrail II , to be held, the next 17 to September 18, More information here .
Thanks to Javi and every member of this club for helping to push the car into Rett Syndrome ...

Josele and Maria ...

Channel 9 news interview

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Hello friends I want to share with you this interview we recently conducted team news from Channel Nou. I would like to thank Anne and the people involved, for having brought to light, an interview like this ....
Thanks, for the carriage drives in many ways ...

Josele and Maria ...

Public Mirror interview, Antena 3 TV

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Hello friends I'd like to share with you an interview, conducted by Susana Griso in Public Mirror program Antena 3. Susan is not only a great professional, but also got on set I felt relaxed, calm, I could express myself with ease, and while television time is money, I did not have that feeling.

Thanks to Susan, his team, each and every one of the professionals with whom I came across that day, because one way or another, they "also drove the car" ...
Here you have the video, hope you like ...

Josele and Maria ...

Voyage to swim against rare diseases

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Hello friends on Sunday June 19 will be held the 3rd swim across Gent per Gent, and that this time, will benefit the fight against rare diseases, among which is the Rett syndrome. The crossing consists of 1500 meter swim in the waters of the beach of the hollyhock, and we expect it to be successful especially in participation and of course, in public.
We will be part of this test and participate in it, so that efforts have been made an information campaign that we will share with you.
It is important to congratulate the per Gent Gent foundation for being with us and help us in our cause it is both that of many other families ...
Here are the reports:

Program "in Connecting to" Canal Nou.

Program "Bon Dia" Canal Nou

"You can only imagine" ....

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Meta Ironman Lanzarote

When I proposed the idea of ​​doing a marathon with Maria, I was branded a madman .... But soon after, and together we made seven ... Who said that a child's disability would prevent you feel the magic of racing? Whoever it was, was wrong ....
When I was asked to make half marathon mountain with Maria, many wondered how? ....
There is only a driving force more powerful than any kind of energy .... will .... the same that makes us fight every day against the adversities of life, is what will allow us to perform imagine that one day, a dream from which I am convinced that I will be able to realize that dream is called Mary in the IRONMAN LANZAROTE ...
In 2008 we crossed the first goal of our life together, that the dreams of many, many athletes as we are inclined when they hear the world's toughest Ironman, but Maria's was able to cross and was able to hang the medal Finisher which both dream ...

Ironman Lanzarote 2008

Today, three years later, thanks to the organization, we participate together in this year's Ironman Lanzarote ... carried out, from swimming, cycling and the solo, and together the marathon segment ....
She does not know, but you really can feel the warmth of the people, the applause, that magic that makes this sport great, will each of the bracelets credited to finish all around, and eventually will FINISHER, realizing imagine what a day with her ...
I just wish that the forces do not fail me to do something that I have much illusion, something I expect to know the Rett Syndrome all over the world, something to do once and for all to invest in research and all this will be possible thanks to all of you that are the essence of this great energy ...

I CAN ONLY IMAGINE ....

Maria and Josele

Help us spread this message ...

Maria Finisher 2011

More information click here ..

1 st Marathon Mountain in Valencia.

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Hello friends, next April 17, 2011 will be held the first Marathon Mountain in Valencia, and that alone is great news, but behind there is another even better. This race starts one of the initiatives that we hope will serve as a precedent. In this test we can perform two types of entries , an ordinary, and another joint benefit of the fight against Rett Syndrome.
I not only here to encourage you to participate in a marathon differently, mountain, which no doubt will change your concept of career, if not to formalize the entry mode Solidario.

todos empujamos el carro....

all push the car ....

I want to remind you that according to new medical advances in research, the neurons in Rett girls are not dead, if not stop, so that in future we can activate these neurons and make them work again. The hope for healing and increasingly there is closer .... Hopefully I can live ...
Thank you all in advance, but especially the organization of this MaMoVa ....

Josele and Maria ...