Do you want to Inform @? You can subscribe to my RSS feed . Thanks for visiting!

Hi friends, last April 2 was the presentation of the book creatures from another planet, written by Elizabeth Pedrosa, mother of Gina, girl with Rett syndrome.
Elizabeth has written a book about the process that has this disease, the long road we must travel from doctor to doctor, from consultation to consultation, how we sometimes take for parents hypochondriacs, and how to get a final diagnosis, that despite being so hard, makes us relax and know that I finally have our children, and so to get to work to make them as happy as possible.
When I pause between lines of this book reminds me, unfortunately I feel like history is repeating itself, as we have lived, not the least difference to what they have suffered in other homes. As if life itself was not complicated enough, and we are even more complicated for us.

However, we must always pull forward, and that Elizabeth is doing very well, has assigned all copyrights of this book to finance an ambitious project that is taking place from San Joan de Deu Hospital, where will investigate this syndrome, and as to somehow alleviate the terrible consequences that these children endure living in a body that can be controlled.

I can not say more than to invite you to buy this book, read it, imagine what someone might think you have to live this disease closely, very closely, because that only means we will be able to know and understand what this syndrome. That's the only way to beat us in the future ....

NOTE-If you do not find in your standard library, leave a comment in this post, and I will answer where you can find it. Thank you for your cooperation.

Maria and Josele ...