Tag Archives: charitable races

Voyage to swim against rare diseases

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Hello friends on Sunday June 19 will be held the 3rd swim across Gent per Gent, and that this time, will benefit the fight against rare diseases, among which is the Rett syndrome. The crossing consists of 1500 meter swim in the waters of the beach of the hollyhock, and we expect it to be successful especially in participation and of course, in public.
We will be part of this test and participate in it, so that efforts have been made an information campaign that we will share with you.
It is important to congratulate the per Gent Gent foundation for being with us and help us in our cause it is both that of many other families ...
Here are the reports:

Program "in Connecting to" Canal Nou.

Program "Bon Dia" Canal Nou

New Campaign Against S. Rett

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Hello friends, after having participated in the Ironman Lanzarote, we have used to edit a new video to accompany a new campaign to publicize our cause, and give the relief that occupied this place until now. I have allowed myself to put a song that is in a video that once moved me, and I think I will not find another that fits better. "You can only imagine." One day Mary thought to share with the world's toughest Ironman today is a reality ...

Moreover, in this new campaign we will also be sold T-shirts Street solidarity, ie short sleeves, we spend the most common, and that in the short term we will have available. I will keep you informed.

Thank you ...

Josele and Maria ...

"You can only imagine" ....

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Meta Ironman Lanzarote

When I proposed the idea of ​​doing a marathon with Maria, I was branded a madman .... But soon after, and together we made seven ... Who said that a child's disability would prevent you feel the magic of racing? Whoever it was, was wrong ....
When I was asked to make half marathon mountain with Maria, many wondered how? ....
There is only a driving force more powerful than any kind of energy .... will .... the same that makes us fight every day against the adversities of life, is what will allow us to perform imagine that one day, a dream from which I am convinced that I will be able to realize that dream is called Mary in the IRONMAN LANZAROTE ...
In 2008 we crossed the first goal of our life together, that the dreams of many, many athletes as we are inclined when they hear the world's toughest Ironman, but Maria's was able to cross and was able to hang the medal Finisher which both dream ...

Ironman Lanzarote 2008

Today, three years later, thanks to the organization, we participate together in this year's Ironman Lanzarote ... carried out, from swimming, cycling and the solo, and together the marathon segment ....
She does not know, but you really can feel the warmth of the people, the applause, that magic that makes this sport great, will each of the bracelets credited to finish all around, and eventually will FINISHER, realizing imagine what a day with her ...
I just wish that the forces do not fail me to do something that I have much illusion, something I expect to know the Rett Syndrome all over the world, something to do once and for all to invest in research and all this will be possible thanks to all of you that are the essence of this great energy ...

I CAN ONLY IMAGINE ....

Maria and Josele

Help us spread this message ...

Maria Finisher 2011

More information click here ..

Half Marathon Puerto de Sagunto ...

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Hi, yesterday celebrated the half marathon at the port of Sagunto, a town near Valencia, where we were to celebrate our last test before the big challenge ...
With extraordinary punctuality, was given out at the same time it began to rain so intense, we put the rain coat dates and Maria, and began the 21 km enduring the rain, but soon after the sun rose.
Commented that throughout our history of racing, workouts, we had everything we needed perhaps only this rain we have endured light rain, sun, cold air, heat, sometimes more than one board inclement, but what never has been lacking is illusion, and especially good company ...
Thanks to the organization assist us as well, especially those friends who are with us every day, race by race, giving his smile, for among all able to push the car ...

Sagunto port half marathon ...

Our next race ... IRONMAN LANZAROTE ....

Josele and Maria ...

Rett Solidarity T "on line"

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Hello friends, I would mention to any news on the shirts of solidarity. Every time we are more and more that we carry these items in racing, and today is almost a classic view some or even several of them at sporting events.

BARCELONA MARATHON 2011

In the last edition of the Barcelona Marathon, I met Sito, who has not hesitated to help us push the car in a special way. Since it has a section "on line" of his sporting establishment, has included these items in its catalog. Importantly, this gesture does for free, ie, the garment has the same price, and that this firm does not get any profit from this work. This only serves to magnify this person, that above all, a great sportsman, besides great friend ...
Here in this link you can buy this shirt Solidarity, and today I can announce that soon you will come to light new shirts, shirt, and other tops, which will continue to maintain that status, that of being truly Solidarity, and it is thanks Sito people like and as many others that day by day you help us push the car.

Thank you ...

SHIRTS SOLIDARITY "ON LINE" CLICK HERE ...

Begin Marathon des Sables 2011

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Maria Ferre

IMPORTANT NOTE ... Today at 9.30 has started the 26th Edition of the Marathon des Sables, 250 km race through the desert, only proves suitable for super-men, in which two friends of ours, and they do it for little girls, Girls with Rett Syndrome. They help with his quest WRI research project against the disease. There in the desert can do something important for them, give our strength and our spirits through this link ( CLICK HERE ) 520 BACK VICTOR CERDA, AND JOAQUIN 567 RELL is free, but we can pass on from here ... priceless They need our support ..., Let them see they are not alone

http://www.darbaroud.com/fr/html/mds/general/26mds_ecrire.php

PUJAETA TO MONTIELIETA 2010 Organized by ACPL

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It is difficult to capture in words all that we feel that day, my family, my friends and I ... I made a video that tries to describe, but not if he succeeds. What if we have achieved is to start an active struggle against the Rett Syndrome, and I hope that over time, this great act they have done in Benaguacil, is the mirror of others in other cities, and other events ...

I tell you that this is a great career, beautiful, interesting, demanding, and above all, most importantly, organized with the heart, I recommend it. A Correr per L'horta (ACPL) can be very proud that they have achieved what they intended. Thanks to all members, friends and other associates, in my behalf and on behalf of all Rett girls ... No doubt a more important race in our agenda for next year ....

Our next challenge ... Half Marathon Tuejar mountain . We want to show that there are no barriers when they want to overcome, and what better example to fight the hardest barriers that exist, the very nature ... sure you get it, and I would like you guys were there to see it, and if not here to read ...

Thanks to all who make this whole "World Rett" is a bit more bearable ....

Josele and Maria ...

Marathon Barcelona 2010

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Hello friends, I have been without writing anything, and think not that I've had issues, if not the opposite, what happens is that they wanted to take center stage in the campaign fundraising of this marathon. If the race but we have made, and the video too, and good I can say about a city that has been ideally from the first to the last person we encountered, a city that lives the Marathon from within, that is involved in it and the race does not bother anyone for any of its streets, that does not let even one of the important places, and has a massive participation.
If the organization also honors this attitude, the result is that we bring a great memory of that race and this weekend ...
I want to thank first to all who helped with this project, the Foundation San Joan de Deu, Associations Catalan and Valencian Rett Syndrome, the Gran Hotel Havana , the manager of Ofimaquinas.com, the group Reggae Microguagua to Merce, Estela, Sergio Saez, Helen, to all who in one way or another have supported us, my family we still race after race, the camera of this video, but I was 42 kilometers short made with the help of my good friend Jose, flew him around the city .... "Gracies Jose, this race will tambe per els teus"

The race continues .....

Vitoria-Gasteiz MARATHON 2009

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Here's the video of Vitoria Marathon, a race he would recommend to anyone who likes good food, and run from a multitude of "aupas" and something more important, with a superb organization both in sports, and personally . We were met at the city and in very few places we've been and remember that even today there are tests that are not received.
But I want to make clear that we had a superb weekend in all aspects, from the hotel to the last detail imaginable, from the time it was good, made the sun and fresh air, very cool, that caught my attention , no pollution

I would like if anyone has thought about doing a marathon, there is one think that if you go once, surely repeat, that is the Marathon Vitoria, at least we certainly repeat next year.
Thanks to the organization, especially Boris, who made this video we can see, Eduardo and Martin, for making it possible participásemos in the test with honors, Aurelio, for introducing us to Boris, and the whole city by show us that "everything is possible."
You are an example, will not change ever ....

Maria and Josele ...

A new Target, Vitoria Marathon 2009

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Dear friends, after a few days of rest after traveling two of the longest stages of the 131K Solidarity, started training again, to make new goals, such that we will cross that Mary enjoy what you like, and so that little by little, mile by mile, we can all beat between Rett syndrome.
Some time ago, send a message to the organization so popular Marathon Vitoria, or of Martin Fiz, with amazing speed, they said, they told me there was no problem for Maria, and her car, participate in this marathon.
Now closer to the event, I look at the condition can begin to announce this new goal. Soon, I will report on how things go, but progress that:

We're going to Vitoria

RACE INFORMATION

Maria and Josele ...