On Sunday about 3 years ago ....

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Hello friends, next Sunday will be a new edition of the Mountain Marathon Espadán. However, in the same test but three years ago I met in person that marked a before and after in our lives and in our struggle.

After the noon, the rain came, the silhouette of Victor Cerda, who wearing a shirt which placed the original on the front "Jo article further espente the car" went into goal beating the cold, rain, and especially the physical problems that carried ...

Victor y Yo, hace tres años...

Victor and I, three years ago ...

Since then we have fallen into a kind of tandem and as I said on one occasion ... together we fight the same enemy ....

Great Victor .... You semper avant Avant

Second Day of Rett syndrome from Teknon Foundation

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"This Saturday, February 18 from 9:00 am to 14:00 pm, Teknon Foundation with the collaboration of the Catalan Association of Rett syndrome, organized the Second Conference on Rett Syndrome: A Multidisciplinary Approach, in order to put available to all involved professional group (pediatricians, primary care physicians, child psychologists, etc..), information needed for early diagnosis and better treatment and care of girls with Rett syndrome.

This conference call will be available live via video streaming www.teknon. is /-rett day with the possibility to interact in real time by extending their questions and comments to the experts through chat or Twitter using the hashtag: # jornadarett "

Panasonic also pushes the cart ...

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Hello friends I write these lines to communicate the initiative of Manuel Saez, he is a very special part of our history. We met him at the head of a section secured to a club, he did something very important for us, and possibly many may know that I speak, great companion and friend, has now launched a publicity campaign internally in the company working. This is the statement.

Comunicado interno Panasonic

Panasonic internal communication

Manuel, in support of this campaign, carried out with our shirts next year's Tokyo Marathon, no doubt our cause will travel away from the hand of Manu, so we wish him good luck from here on that test ....

Hi, today February 26, we received the photo My World Rett has also been in the Tokyo Marathon ....

Finisher Maraton Tokio...enhorabuena ¡¡¡

Tokyo Marathon Finisher ... congratulations

Thanks Manu always walk with us ....

Maria and Josele ...

Next Goal ... 2012 Seville Marathon

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Hello friends, next Sunday in Seville participate in our tenth marathon. And we will do with the help of Club Deportivo Los Jartibles, who for nearly a year been preparing our visit to the city.

I want to thank the organization that have worked well so we can see and enjoy the city from the marathon, plus we will also be at the Fair of the corridor with our particular information campaign ..

Para vosotros Los Jartibles...Febrero 2012

For you ... February 2012 The Jartibles

See you in Sevilla ...

Maria and Josele ...

Tve Repor

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Hello friends and we network our last report, which was recorded for TVE.
I want to thank the organization of the Marathon of Castellón, all friends who are with us day after day, race after race, and Gloria and her team for doing a nice Repor ... thus I hope you like ...

TVE REPOR PROGRAM February 3, 2012

The Mountain Race Vilavella

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Hi, just a week after returning from the Rett-Turn, and with almost no time to rest, we were in the Vilavella Cursa. 19 km, mountain and where the team participated Cazarett-Os, running, and making our information campaign.
I want to thank the Organization of the Test, the City of La Vilavella Excellency, Mr Mayor, the Councillor for Sports, and Castellon County Council.

Exmo Ayuntamiento de la Vilavella tambien empujan el carro

Hall Excellency also push the car Vilavella

Yet there is something very important to emphasize, in this test, and each bag of nearly 1500 runners, had one of our solidarity bracelets, thanks to the sponsor of the test PROVEFE , who made ​​a generous donation to the Foundation Sant Joan de Deu ...

Pulseras Solidarias Mi mundo Rett

Bracelets Rett My World Solidarity

But all this would not have been possible without the work of Anne and her family ....

Please keep fighting ....

Maria and Josele ...

The Rett-ending Tour ....

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Hello friends, known as the Rett-Tour came to an end, and it was as expected, with the strength and drive of all of you, but above all was Mary, of course ... This picture was taken a few minutes before departure, his look, his attitude, his strength, says it all ....

From here, the six that we were CazaRettOs team, we began to roll towards Barcelona for the 340. Slowly the hours passed, kilometers, with an image in the mind ...
When we had over 250 km, our friend Jesus Bellvís, we was still in the support car, he said ... "we have more than two hours ahead of the best forecasts"
At this time we try something almost impossible, take it easy this Rett-or, I think it was more complicated ... In the end we arrived on time, and there we waited many friends, journalists, our research, all team Hospital, and also members of the Catalan Association S. Rett ...

For 23 hours and 58 min, pedaled relentlessly defying the cold air, the weariness of the sleepless hours, giving a relief, then another, after pedaling pedaling ..... managed to make possible what seemed impossible, and if we come on time, it was thanks to the great team that we are both athletes and support ...

We carry over 50,000 Euros to be carefully collected in 2011, and give life to this research project, but above this number, we can never buy anything that money ....... Hope .... ....

I want to thank our sponsors, IMELSA, I TERRA MAR DIPUTACIO VALENCIA , and collaborators CONSORCI BOMBERS , Leonia , CULTBIKES , TRACEMYWAY , JV Sport , our team of CazarettOs , my friends, my family, students of the Academy of Gavà Nuria , to our tireless friend and companion Site of RUNNERING , to all who have contributed their bit small, and whose work and dedication have made ​​this possible ...

Only one who is alive moves ...
Thanks to all ...

New Rett-o ..... The back-Rett ...

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Hello friends, I want to communicate our new retto, Rett's Gulch, so we call it, and why we get virtually all the resources throughout the year 2011 we have raised. However what we do with a peculiarity, which I describe you.

We take them as if you were Maria, meaning that we will leave home and arrive at San Joan de Deu Hospital, covering the distance between both points of about 400 km, and within 24 hours. To do this we use only our road bikes. We will form a team of great friends and athletes, with a curriculum quite extensive, and include:

  • Victor Cerda, ultrafondista (Marathon des Sables, 300km, the Victorious ... etc)
  • Marcos Martinez. (Marathoner, Ironman finisher Did the Double)
  • Roser Baello (women only twice the Double Ironman finisher Did, Ironman Lanzarote)
  • Edson Diaz (Lanzarote Ironman finisher, Calella, Bearded sub 7h, etc)
  • Jesus Fornes (professional skater speed, sub Bearded 7h, uncle of Mary)
  • Josele Ferre (father of Mary)
Maria con Marcos, Roser, Victor, Josele, meta del Doble Ironman

Maria Marcos, Roser, Victor, Josele, goal of the Double Ironman

We will make this journey of 400 miles, all together, without rest, and in less than 24 hours, we plan to use 23.30 h. During this time only stop to eat, and make technical stops, which will never exceed more than 45 min. The road ahead is mainly by the former General 340, always looking for flights of less traffic flow.

The output will take place at 11.00 am on day 21 January, and plans to reach Esplugues de Llobregat (Barcelona) at 10.30 h the day on January 22 and arrive with sufficient forces to deliver the heel to help finance the project carried out in this hospital.

But take something that is more important for us, hope .... hope that a better future for Rett girls may be getting closer ....

Take a GPS device through http://tracemyway.com/ can see in real time where we, and what progress, as well as send messages to the moment we arrived through http://www.cazarettos. org / ... will be happy to see you along the path that the spirits are always very important.

Neither we, nor anyone I know has ever done so many miles in such a short time, and I want you to know from whom this idea was born, was Marcos Martinez, who crossed the line of the Double Ironman, I proposed this Rett-O , is a sign of his greatness as an athlete, and more as a person.

I want to thank Imelsa, Terra i Mar, Deputation of Valencia, Bombers Consortium, Caravans Baby Bear, Tracemyway, Cult Bikes, Sport Juanvi, and all who are anonymously with us, help us and where we are Let us go, all of them Thank you ...

See you next day on January 22 in San Joan de Deu Hospital ....

Thanks to all ...

Maria and Josele ...

Our T-shirts .....

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Hello friends this afternoon go to Pamplona 22 of our shirts, which will carry Osasuna FC players in their second leg of the Copa del Rey as he left the pitch. This party will be held on Thursday at 22.00 hours on the stage of the Kingdom of Navarre, and will be broadcast live on telecinco ...

Josele y Maria...

Josele and Maria ...

This magnifies the club Osasuna who joins our cause, joined with his gesture, make visible and support the struggle for Rett Syndrome Research. A good example that we would be repeated more often. Thanks to Dani, Maider, and all whose work made this possible ....

Josele and Maria ...

Cadena Ser interview

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Hello friends, the last day on December 31, we interviewed from the Cadena Ser program, "Be adventurous". Since the day so stated, we have not been able to share today, here I leave the link.
Specifically, our interview is between minutes 32 and 42, although the rest of the program is also interesting ...
Thanks to those who made it happen ...

Maria and Josele ...