Future goals ....

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Hi, for some time that the activity of this Blog is not usual, but not because we do not do things, if not the opposite. For some days we do not stop writing and submit collaborative projects to major firms, that if they go forward, we will allow ourselves heard more and more strong, and we can give a good push to only research project on S. Rett, which exists in our country. Hopefully what we have in mind to succeed, and soon we can share.

Maria hands (with one year of age)

Commentator take the possible timing of races we have planned, but we must keep in mind that you may be subject to change, because we do not know where we can call to participate in any test. We have dared to make a small scheme which may be our next races, these are:

Montelieta-Pujaeta to September 11, 2010 (Benaguasil) MORE INFO

Benefit race in which they raise funds for financing the research project against S. Rett

- Half Marathon Mountains Tuejar October 3, 2010 (Tuejar) MORE INFO

Race 1, mountain, where we show that there are no barriers when trying to overcome. Benefit race in which they raise funds for financing the research project against S. Rett

- Half Marathon November 14, 2010 Petrel (Alicante) MORE INFO

A test in which we are invited in each issue, and where you live another girl Rett, and also call on other Rett families from nearby towns.

- Half Marathon Valencia November 21, 2010 MORE INFORMATION

A test in which we recorded for the documentary that is being done on us and that will come out later this year, be entitled (Goal Line) Production, Scandal Films (Barcelona).

-Half Marathon Xirivella (Valencia) MORE INFO

My hometown, the place where it is unnecessary and we joined, we are part of it ...

-Marathon Barcelona 2011 MORE INFORMATION

It will be our second participation in the test, and where there will be a campaign fundraiser for the funding of the research project against S. Rett.

-Martin Fiz Marathon 2011 (Vitoria-Gasteiz) MORE INFO

This test even though it is too close in the calendar of the following, we call on other Rett families in the vicinity, the organization is exemplary and are turning toward us, in short, is a marathon we can not let go for so many reasons it is difficult to describe.

Ironman Lanzarote-2011 MORE INFORMATION

This is the toughest triathlon in the world, and which I hope to do with Mary all part of the segment of "walk" that allows me to the organization. My intention is to do the whole marathon with her, but I am subject to the decision of the judges of the test. This would be the goal between the goals, I know of no more exciting than this, and will be the second time you cross with Mary.

There are other tests such as Marathon Castellón, and many more that as of today I can not secure our participation, but I repeat that this calendar is subject to change.

32 th Course The English Court, Barcelona

Hello friends I am writing to tell you that the next Sunday we will be in Barcelona 30, participating in what is possibly the career of this country more crowded. Once again we return to the city that welcomed us in an exemplary way in the last edition of the Marathon , and as they say, coming to Barcelona for the first time for sure repeating ...

Soon's edit chronicle of the event in which participate accompanied by some very special friends ...

Thanks and good luck to all participants ...

More info ...

Near Vitoria Marathon Goal

Hello friends, a year that witnessed the marathon is one of the most beautiful I know, if not its people, its organization, by race day atmosphere, the beauty of their city, or at all. The fact is that if last year made a difference difficult to overcome, for this year, as they do not but have been surpassed.
We'll be in the city of Vitoria , to Maria than what will be his fifth marathon . We would like to see you all there, providing encouragement and screaming .... A For the fifth

See you at the finish ...

Josele and Maria ...

GOAL BARCELONA MARATHON 2010

I ALSO AGAINST push the cart RETT SYNDROME

A new year, and always ask for things that often can not meet, but in my mind takes some time moving a project, an ambitious, you can help change things, the Rett Syndrome, a little more weak, and that we can go slowly gaining ground.
A few months ago I was told that there is a project of research on this syndrome in the Hospital San Joan de Deu (Barcelona) and works through the FOUNDATION of the same name, and season after season trying to raise the necessary funds for this project not cease for financial reasons.
It is carried out by Dr. Mercedes Pineda and his crew, who were in his day genetic analysis of Mary to diagnose.
The idea of participating in the Barcelona marathon with Mary and try to raise funds for this project. It would establish a grant for each kilometer of the race and that this levy would directly fund the research project from Rett syndrome.
We have spent some time working on the issue, and I think it's time to present it to the whole world, all you who are following every day. We have to go all the action of pushing this car really, actively struggle, Mary does not just travel here but a lot of girls and parents like us who suffer from this disease, Rett Syndrome.
We will establish a symbolic donation per kilometer, which is 10 Euros, while the marathon is 42 miles, try to donate all possible, to not put limits on the campaign, we thought so also do Kilometer 0, where they would stop those other donations.

We also seek potential sponsors, in addition to any other ideas that can help us in this project.

For this campaign, I prepared a special video. In its edition we have recovered images when Mary was a normal girl. For us parents, this is very hard, because you tried to relive moments forget.

It is important to note that this video does not reflect the day to day with the disease, which tries to see the most friendly and nice, but I assure you that the reality is quite another ...

The way to make donations, will be two ways, one directly on the official website of the Foundation San Joan de Deu, clicking on this link DONATE filling in the comments section, MARATHON RETT. This will go to that particular game, or also by a transfer to the account number, also from the Foundation: 2100 - 3887 - 05-0200037438 of the Caixa .

We hope your support and solidarity, so that together and gradually winning the race can go to this fatal disease ...

Josele and Maria ...

BACK TO PETRER

¿que escucha Maria ?

Hear what Maria?

Hi, I write these lines after reading the mail that we received from John, a member of the organization of the Half Marathon Petrer (Alicante).
We write invitations to participate in this edition of the race, making us the honor to assign the number 2 back because it is the second year that we participate. For us it is very gratifying that we are welcome not only a test, but it year after year, we are invited.
This year we will have some changes that make us better carry over the miles, as the new car thanks to Blue Line sports team, Maria will make a lot more comfortable, and step to me to push costs less. Also luciremos luggage through Valencia Association Rett Syndrome. What I hope does not change, is the great reception that we have in this city, and above all the friendliness of our small Romero family, who live there.
We are eager to perform that will be our first race this season. See you next day in Petrel October 18 ...

Maria and Josele.

CHARITY CONCERT LINE BLUE

concierto solidario Rett

Rett charity concert

Hi, I have the pleasure to inform you that from the Blue line club, will organize the first show of solidarity. In this event, and already starting to get used to the important thing is not to stop and do one thing after another, we have agreed, and in the El Loco, located in the street Scholar Orellana, 12 Valencia, act: Gilbertástico , Lynn, Fernando and Bas. Tickets are 10 Euros, and most importantly, the collection will be donated equally to the Valencia Association and Rett Syndrome Foundation Juan Bonal in Brazil. Regarding VS Rett Association, the funds will go towards the ambitious research project being carried out in San Joan de Deu hospital, to see if we're lucky we have discovered something scream that will make the Rett girls, stop being so.

In this same case for funds raised go through the copyright of the book "Creatures from another planet" by Elizabeth Pedrosa, where in his BLOG there is also the account number for the collection of contributions that fund this research project.

Here you have more information, the Forum Blue Line

A new Meta, Vitoria Marathon 2009

Dear friends, after few days of rest after traveling two of the longest stages of the 131K Solidarity, started training again, to prepare new goals, such that we will cross that Mary enjoy what you like, and so that little by little, mile after mile, we can defeat of all Rett syndrome.
Some time ago I send a message to the organization of Vitoria Marathon so popular, or of Martin Fiz, with amazing speed, they said, they told me there was no problem for Maria, and her car, to participate in this marathon.
Now closer to the event, I look at the condition can begin to announce this new goal. Soon, I will continue to report on how things go, but progress that:

We're going to Vitoria

RACE INFORMATION

Maria and Josele ...

131 km SOLIDARITY AGAINST CANCER.

> Hello friends, I will tell the next project we are going to join Mary and me. On the 9th of April, began the 131 miles Cancer. So suddenly sounds a little weird, but it is a great idea of ​​the Blue Line club, and which will be staged a march that will cross the greenway black eyes.
Pursued by this gesture to raise funds for donation to the association against cancer, specifically the children's home in Valencia.
This journey takes place in stages, about 20 km or so, and during the Easter holiday period. The steps come out of the most emblematic towns, and is intended to encourage athletics as well as raise awareness about people with a wealth of history, and that once united the city of Teruel and Valencia by road.
The project is certainly exemplary, and we will accompany the caravan of runners in one or more stages, as we allow the physical condition of Maria, or not, during the tour, if all goes well.
I invite you to participate in this journey in some miles, or at all, at some stages, or all, would be very good for those 131 K Cancer are the 131 K of Solidarity and support for those people who unfortunately suffer a disease that should not exist.
The way of working is very easy, and in many ways, I attached the link where is all this information, I think the reason it deserves.
Courage, and join us in these 131 km Cause you deserve ...
INFORMATION
WAYS TO HELP
For if you are in any doubt as to their intended the funds raised by this case, look at this video, about words. VIDEO OF SOLIDARITY 131 Km CANCER <

MARATHON VALENCIA 2009

Maria

Maria

Hello friends, so there are only 4 days to that at 9 am, about 4000 athletes defy the mythic distance of 42 kilometers 195 meters. Understanding that will say good weather, and very importantly, it will not air, which took several years the wind has hurt us a lot.
Well, I want from here to give encouragement to all who choose us to help you read to encourage everyone, since not only are we Maria and I, if not many more participants, which in the last km I will be very useful to those cries of encouragement to help them continue to give one step after another, not to stop, to continue to cross that finish as desired arc.
Those who will participate in the marathon, I just want to tell you to finish the race, not only depends on having trained well, just bring km, neither few nor too many, which is very difficult, but to be convinced that we to do the marathon from start to finish, and especially the marathon does not run with your legs, if not something much more important ... .. the head. Try to remember this when you invade fatigue. Nothing more, good luck to all, and ... ... .. See you at the finish.

Maria and Josele ...

MISSING 32 DAYS

Maria y Josele

Maria and Josele

Hi, after 10 K, and begin to make this new car miles thanks to the team we have BLUE LINE, let's give Maria a new goal, that which means so much to us, MARATHON VALENCIA 2009.

We've been talking with the organization, and provides authorization for testing the mythical gesture that honors them, and will also manage all the details so that we do not have any problems during the race, so if all goes well we have an appointment The next day, February 22 at 9 am, I invite you to come and watch the race, and give encouragement to people who participate in it, certainly in the last kilometers helps a lot. Thanks for helping the organization, we will be in goal ...

Josele and Maria ...

Career information