MERRY CHRISTMAS

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This is the first Christmas that we can share through this blog, and so, from here we want to wish the family Ferre Navarro, we are also expecting a new baby, congratulations, and Happy New Year 2009. We hope that this year ahead is full of great advances in all fields especially in medicine, and help our daughters to be a little happier.

Navidad 2008

Christmas 2008

10 K Valencia

Hi, after a time out, we will start again to make longer runs where we participate, we realized how important and rewarding to be part of them, as do so in a natural way, ie not be forced situations, when the organization is sensitive to the situation of Maria, and consider to do a hole that car, there will be, revealing Maria's illness, and children pretending to mobility problems there and feel like you more.
Thus, we will participate the so-called 10 K Valencia, the club organizes BLUE LINE, in collaboration with the Hon. City Council of Valencia. The club has had great detail to allow Maria and I participate, honoring the enormous implication of having my daughter, I think we certainly have much to learn from them, their desire to do things, important things, and which are for others, the same who suffer the consequences of another disease that no one would have to have the cancer. BLUE LINE organized the first race to raise funds for the fight against this fatal disease, without a doubt an example to follow. From here we encourage everyone to make more solidarity km, helps many people to stay in the race of life. Hopefully we can return the gesture with a massive participation. Thank you.

Josele and Maria ...

Career information

Rett girl who understands my experience.

Hello, as I said earlier, has made a video in which I think you can see quite clearly that my daughter Maria, understands many things that you say, that identifies their name, songs to the accompaniment of a guitar, and so on. To hear these songs it reacts with a smile. This happens when in an environment they know, in this case your house, and an episode of calm, or connection, fortunately, is becoming more and for longer, especially depending on what is happening to their about.
You can also see perfectly the criteria of choice you have with food, since it is not like what we're giving, but if you prefer to choose one thing to the other.
I tried to make this video not too long, and not take too short, so you can see clearly what I'm saying.
When I took her to run, traveling at a speed as atypical, and see things move around quickly, is very aware of everything, and during this time has no absence seizures, or apnea or anything, is tremendously connected ..
I hope this video helps you to live a little better with them, and that alone is worth it.
A big hug.

Josele and Maria ...